Cynthia Lang is a founding member of the SKDEAS Foundation. Her beautiful son, Sebastian, was four years old when diagnosed with Skraban-Deardorff Syndrome in 2021. Cynthia is dedicated to furthering our strategic research efforts and moving translational research treatments forward to enhance the lives of everyone impacted by SKDEAS.

Cynthia has spent over ten years in healthcare administration. She currently serves as the CEO of a large specialty physician group in NC. She enjoys spending time with Sebastian and his sister, Sabrina, who are the loves of her life.

She is honored to serve on the SKDEAS Board of Directors and partner with the Foundation to advance the science. We must keep going. Our kids are counting on us.