As a mom of a son with Skraban-Deardorff Syndrome, I started listening to podcasts as a form of therapy and to get advice for how to navigate through the emotions and questions that come with having a child with a rare disease diagnosis. The podcast was created for those impacted by Skraban-Deardorff, and other rare diseases, as a way to share stories, ask and answer questions, get advice, and have a platform where we can work to understand together what the diagnosis means and how we can support each other. If you have any topics you would like to be discussed, or if you would like to be a guest, please reach out to me at podcast@skdeas.org.