Cara SkrabanFeb 28, 20233 min readRare Disease DayRare Disease Day is an annual international event created to raise awareness of the hundreds of millions of people around the world...
Jackie JonesDec 19, 202221 min readSchooling and CognitionBlog Post for Travis - School P.T. Barnum once said, “No one ever made a difference by being like everyone else.” Our children make a...
Matthew DeardorffNov 4, 20223 min readDr. Deardorff: Thoughts on the Family MeetingDr. Matthew Deardorff shares his thoughts on the family meeting held in Philadelphia.
Emily & Richard GerstSep 10, 20223 min readFriday Kick-off (7/29/2022)Emily & Richard Gerst, parents of Cecilia (8) July 28-30, 2022, Children’s Hospital of Philadelphia hosted the 3rd biennial...