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Cara Skraban
Feb 28, 20233 min read
Rare Disease Day
Rare Disease Day is an annual international event created to raise awareness of the hundreds of millions of people around the world...
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Jackie Jones
Dec 19, 202221 min read
Schooling and Cognition
Blog Post for Travis - School P.T. Barnum once said, “No one ever made a difference by being like everyone else.” Our children make a...
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Matthew Deardorff
Nov 4, 20223 min read
Dr. Deardorff: Thoughts on the Family Meeting
Dr. Matthew Deardorff shares his thoughts on the family meeting held in Philadelphia.
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Emily & Richard Gerst
Sep 10, 20223 min read
Friday Kick-off (7/29/2022)
Emily & Richard Gerst, parents of Cecilia (8) July 28-30, 2022, Children’s Hospital of Philadelphia hosted the 3rd biennial...
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